The research we support usually explores how the different aspects of care, including physical, social, spiritual and psychological aspects, can be improved for patients, and their families and carers.
Common research methods that we use are:
We are currently actively recruiting patients for two research projects.
The Motor Neurone Disease (MND) Register for England, Wales and Northern Ireland.
The Motor Neurone Disease Association (MNDA) website contains information about research projects that people with MND and their carers might be interested to hear more about. If you would like to learn more about any of these research projects, or you think you might be interested in taking part, then please click here to be directed to the MNDA website.
Exploring the impact of audio-recording for Hospice Patients; The Hospice Biographers Model.
This study based at the Brighton and Sussex medical school wants to find out more about the experience of completing an audio-biography (life story) and the effects of receiving an audio-biography from a loved one. The researchers are conducting one-to-one interviews with people who have either recorded or received an audio-biography to understand more about what the experience was like and what can be done to improve the experience for others of recording or receiving a biography in the future.
To find out more about research at Phyllis Tuckwell, please speak to a member of the Research team:
Dr Jo Vriens (Palliative Medicine Research Consultant) jo.vriens@pth.org.uk
Jane Ryman(Palliative Research and Clinical Outcomes Nurse) jane.ryman@pth.org.uk
If you are invited to be part of a research study, you will be told exactly what being in the study will involve. If you don't want to take part, you are free to say no. If you do agree to take part, you can change your mind at any time. You do not have to give a reason why you changed your mind, and saying no will not affect the care you receive.
