Research

Why do we do research?

Phyllis Tuckwell wants to make sure that you and your family receive the best possible care and support.  Carrying out research helps us to understand the needs of those that we are caring for, so that we can best support future patients and families.

What type of research do we do at Phyllis Tuckwell?

The research we support usually explores how the different aspects of care including physical, social, spiritual and psychological aspects, can be improved for patients, and their families and carers.

Common research methods that we use are:

  • one to one interviews with a researcher,
  • focus groups
  • questionnaires.
Current research projects

We are currently actively recruiting patients for two research projects.

We are also promoting the “Join Dementia Research” project.  Please see the video below.

The Motor Neurone Disease (MND) Register for England, Wales and Northern Ireland. This study is being organised by researchers at Kings College Hospital and John Radcliffe Hospital in Oxford. The purpose is to collect and store information about every person with MND in the UK. The information collected will be used by researchers to look at how many people are diagnosed with MND each year, how many people currently have the disease and how this is changing with time. Information about where people with MND live is also collected to allow for planning the care of people with MND. It will also tell researchers more about the possible causes of MND. We collect information about the disease itself, for example, where a patient first noticed symptoms, so researchers can look at how this relates to disease progression.

ProSec3 – A multi-centre evaluation of excessive saliva management in patients with Motor Neurone Disease (MND). This study is being led by the Sheffield MND Care and Research centre and is assessing how saliva problems are affecting patients with MND. The study will be looking at how many patients with MND have saliva problems and how problematic this is. It will also look to compare the different therapies for managing saliva and the side effects they give rise to. It also aims to develop an effective way of measuring the severity of the saliva problems that patients with MND are experiencing.

Want to know more?

To find out more about research at Phyllis Tuckwell please speak to a member of the research team

Dr Jo Vriens (Palliative Medicine Research consultant) – Jo.Vriens@pth.org.uk

Louise Groves (Palliative Research Nurse) – Louise.Groves@pth.org.uk

If you are invited to be part of a research study, you will be told exactly what being in the study will involve. If you don’t want to take part, you are free to say no. If you do agree to take part, you can change your mind at any time. You do not have to give a reason why you changed your mind, and saying no will not affect the care you receive.