Caption: Phyllis Tuckwell staff are presented with the Extra Mile Award.
Local charity Phyllis Tuckwell Hospice Care (PTHC) has been presented with the Extra Mile Award by the Motor Neurone Disease (MND) Association, acknowledging its exceptional work in caring for people living with MND.
The Extra Mile Award was presented to the PTHC team at the Hospice, following one of its six weekly multi-disciplinary team meetings, where all clinical members of staff who are involved in the care of Phyllis Tuckwell MND patients meet to discuss each patient’s care needs.
Motor Neurone Disease is a progressive disease which attacks the nerves in the brain and spinal cord which control muscles, stopping messages from reaching muscles and leading to muscle weakness and wasting. It can affect patients’ ability to talk, swallow and move, and becomes worse over time.
5% of the patients Phyllis Tuckwell cares for have MND, and they are supported by the charity in many ways. In addition to nursing and medical care, patients may be offered physiotherapy, occupational therapy, complementary therapy, respite care, counselling, clinical psychology and social work advice.
The regular neurology meeting, which is held at the Hospice, is attended by professionals from the local acute hospitals and community teams as well as by PTHC staff, including doctors, clinical nurse specialists, speech and language therapists, social services advisors, occupational therapists, wheelchair services staff, respiratory staff and dieticians. The support of the MND Association was instrumental in setting up these meetings, in 2012.
Phyllis Tuckwell was nominated for the Extra Mile Award by Val Clinch, a voluntary visitor for the MND Association, after her experiences of individuals’ needs being addressed over and above what would be expected of the normally high level of care provided by Phyllis Tuckwell. “The respiratory clinic which they hold at the Hospice reduces stress and additional travel for patients,” said Val, “while one of the PTHC consultants works at both the Hospice and the local acute hospital, ensuring a continuity of care for those patients who are treated at both sites. Staff constantly check their care against national standards to ensure that their MND patients are getting the best possible service, and their rapid response to patients’ needs and the flexibility of their provision of care impressed me greatly.”
“The team at Phyllis Tuckwell were delighted to receive this recognition for our work with patients living with MND,” said Nick Dando, Consultant in Palliative Medicine at Phyllis Tuckwell. “Central to the delivery of this care are the collaborative links that Phyllis Tuckwell has developed over the last five years with our excellent colleagues in local hospital and community teams. These relationships have enabled Phyllis Tuckwell to coordinate and deliver individualised care to patients living with this complex illness.”
Phyllis Tuckwell provides supportive and end of life care for patients and families who are living with a terminal illness, such as MND or cancer, in West Surrey and North East Hampshire. It supports over 250 patients, relatives and carers every day – in their own homes, in the community, at the Hospice in Farnham and at the Beacon Centre in Guildford – providing medical and nursing care, therapies, counselling, social work advice and practical support. As the NHS/Government only covers 20% of its costs, it has to raise over £20,000 a day to be able to offer all these services, which it provides free of charge to patients and families. It therefore relies heavily on the support and generosity of the local community to help it raise these funds.
The MND Association is a national charity dedicated to promoting research and support for people affected by MND. It works to improve care and support for people with MND, and their families and carers, and to fund and promote research that leads to new understanding and treatments.
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For press enquiries and alternative pictures contact: Jen Barnes at Phyllis Tuckwell on 01252 729433 or email firstname.lastname@example.org