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Frequently Asked Questions

How can we help?

How do people get referred to Phyllis Tuckwell?

Usually your GP or hospital doctor will refer you. If you think that Phyllis Tuckwell may be able to help you or someone you love, we suggest you ask your GP first. Most GPs in our local area know who we are and what we can do.

I've been referred to Phyllis Tuckwell, what happens next?

If you have been referred to Phyllis Tuckwell by your GP, hospital or consultant, the first contact you will have from us will be a call from one of our team of clinical nurse specialists (CNSs). They will talk to you on the phone and may visit you in your own home.

As the first contact that a patient has with Phyllis Tuckwell, they try to ensure that any questions you have are answered and any fears or anxieties are allayed.

The CNSs form a vital link between the comforts and reassuring surroundings of a patient's home and the full range of clinical expertise that exists within the Hospice Care service. They address not only physical symptoms, but also emotional psychological problems faced by patients and their carers at a very stressful time.

Is Hospice Care only for people with cancer?

No - we care for people with any advanced or terminal illness, including cancer, Motor Neurone Disease, heart or lung disease, or neurological conditions.

What is Phyllis Tuckwell's view on Assisted Dying?

Through the palliative and end of life care services we provide, Phyllis Tuckwell seeks to neither hasten nor postpone death. Please see our Assisted Dying page to read our statement regarding the Assisted Dying Bill 2014-15.

Once I am admitted to the In-Patient Unit, can I be discharged?

Yes, around one in five of our patients are discharged. If conditions at home are suitable and your carer can cope, we will help you to go home and stay at home if that is what is best for you.

We provide physiotherapy and occupational therapy to make sure you are ready and able to return home, and we are able to support patients out in the community with our clinical nurse specialists who do home visits.

If you have any questions regarding being referred to our In-Patient Unit, such as what happens and if you can do anything to help prepare for your stay, visit our In-Patient Unit page.

What is the difference between Phyllis Tuckwell's clinical nurse specialists and a Macmillan nurse?

There is not much difference - they are highly trained nurses specialising in palliative care. Macmillan does not fund our clinical nurse specialists so Phyllis Tuckwell covers the cost of providing this care.

Do I have to pay for Hospice Care?

No, it is free and we will look after you and your loved ones for as long as is needed - at referral, while you are with us and after bereavement. However, Phyllis Tuckwell is a charity and we need to raise over £25,000 a day to provide all our services. We rely on public donations, so if you can make a donation to help cover the cost of caring, we would really appreciate it. You can ask a member of staff on our In-Patient Unit or at the Beacon Centre for a donation envelope. Alternatively, you can donate online.

Does everybody who enters the In-Patient Unit die there?

No. Hospice Care does not mean hopeless. Our approach emphasises that positive outcomes can be realised, by boosting confidence, defining and achieving personal goals and living life as fully as possible. Often misunderstood, our In-Patient Unit is not just for final days - 30% of inpatients return home after respite care or having their symptoms controlled.

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"I was able to focus on things like organising family visits, because her care was being managed by Phyllis Tuckwell."

Phyllis Tuckwell - Frequently Asked Questions
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Please help us

All our services are free, but this is only possible due to the generosity of our amazing community. The Government/NHS only provide 25% of our costs, so we need to raise over £25,000 every day to provide our vital services.

Please donate what you can to help keep hospice care available to all those in our community who need us.

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