Q: How do people get referred to Phyllis Tuckwell Hospice Care?
A: Usually your GP or hospital doctor will refer you. If you think that Phyllis Tuckwell may be able to help you or someone you love, we suggest you ask your GP first. Most GPs in our local area know who we are and what we can do.


Q: I’ve been referred to Phyllis Tuckwell, what happens next?
A: If you have been referred to Phyllis Tuckwell by your GP, hospital or consultant, the first contact you will have from us will be a call from one of our team of Clinical Nurse Specialists (CNS). They will talk to you on the phone and may visit you in your own home.
As the first contact that a patient has with Phyllis Tuckwell, they try to ensure that any questions you have are answered and any fears or anxieties are allayed.
The CNSs form a vital link between the comforts and reassuring surroundings of a patient’s home and the full range of clinical expertise that exists within the Hospice Care service. They address not only physical symptoms, but also emotional and psychological problems faced by patients and their carers at a very stressful time. For more information regarding our CNS team, please click here.


Q: Is Hospice Care only for people with cancer?
A: No – we care for people with any advanced or terminal illness, including cancer, Motor Neurone Disease, heart or lung disease, or neurological conditions.


Q: What is Phyllis Tuckwell’s view on Assisted Dying?
A: Through the palliative and end of life care services we provide, Phyllis Tuckwell Hospice Care seeks to neither hasten nor postpone death. Please see our Assisted Dying page to read our statement regarding the Assisted Dying Bill 2014-5.


Q: Once I am admitted to the IPU, can I be discharged?
A: Yes, around one in three of our patients are discharged. If conditions at home are suitable and your carer can cope, we will help you to go home and stay at home if that is what is best for you. We provide physiotherapy and occupational therapy to make sure you are ready and able to return home, and we are able to support our patients out in the community with our Clinical Nurse Specialists who do home visits. If you have any questions regarding being referred to our In-Patient Unit, such as what happens and if you can do anything to help prepare for your stay, please click here.


Q: What is the difference between Phyllis Tuckwell’s Community Nurse Specialists and a Macmillan nurse?
A: There is not much difference – they are highly trained nurses specialising in palliative care. Macmillan does not fund our Hospice Care community nurses so Phyllis Tuckwell covers the cost of providing this care.


Q: Do I have to pay for Hospice Care?
A: No, it is free and we will look after you and your loved ones for as is needed – at referral, while you are with us and after bereavement. However, Phyllis Tuckwell is a charity and we need to raise over £20,000 a day to provide all our services. We rely on public donations, so if you can make a donation to help cover the cost of caring, we would really appreciate it. You will find donation envelopes at the Hospice, The Beacon Centre or you can donate online on this site.


Q. Does everybody who enters the Hospice die there?
A. No. Hospice Care does not mean hopeless. Our approach emphasises that positive outcomes can be realised, by boosting confidence, defining and achieving personal goals and by living life as fully as possible. Often misunderstood, our In-Patient Unit is not just for final days – 30% of In-Patients return home after respite care or having their symptoms controlled.


Q. Do you only take care of people in the Hospice?
A. No. Phyllis Tuckwell Hospice is more than just a building. 85% of our care with patients, carers and relatives, is provided away from our In-Patient Unit. To read about how we support relatives, friends and carers, please click here.


If you have an unanswered question, please contact us at 01252 729400 or email pafs@pth.org.uk